I loved this post from @autism_lovers – it demonstrates how much acceptance is part of daily life in a home with autism.
Living with autism means that differences are not just tolerated, but that they are appreciated.
It means being a top-notch detective and trouble-shooter.
Living with autism means learning to be flexible, patient, and – above all – incredibly creative.
I feel blessed to have the opportunity to work with children with autism in the realm of physical activities – I make a point to take note of the parents when they drop their children off, and during any and all interactions they may have. Each child is different and I am ever astounded by how well parents navigate often choppy seas. I know that behind the scenes it isn’t always the smooth sailing we see…and I think that makes me appreciate, all the more, how much those parents do each day to ensure the best communication and opportunities possible.
As someone on the outside, I want to commend those parents who live this daily. In a way that you may never realize, you touch others’ lives too. You teach the rest of us how important it is to accept one another as we are, to be patient, to love to the full, and to laugh (especially to laugh!) even in the face of adversity.
#doL ❤ VE”
Some weeks ago I started an ASL (American Sign Language) course online – I regularly volunteer with children with disabilities and had asked a mom (whose four year-old boy both has autism and is deaf) for some ASL resources. Her son additionally suffers from a little bit of separation anxiety, which isn’t horribly uncommon with autism – when he comes to our volunteer play sessions, there are times that he begins to cry and it’s terribly tricky to discern what will make him feel more comfortable. While I was already interested in learning ASL (up to 50% of autistic individuals are non-verbal), this little guy was enough to get me on the road to finding a class…as soon as possible.
The awesome news is that I also volunteer with Special Olympics-driven skating sessions once a week that includes a number of children who are either hard of hearing or completely deaf. There’s nothing quite like being able to communicate with them – being able to sign even a single word is exciting! (I definitely have a way to go!)
A couple of days ago, though, I came down with a cold of some kind – as a result of contagiously coughing, I lost my voice – and I mean completely. Talk about being in someone else’s shoes…
Horribly uncomfortable a “bug” is for any of us, it’s nothing compared to what some children and adults have to deal with on a regular, and life-long basis. In a strange way, I feel thankful that I can’t speak because it’s an exercise in understanding what it *might* be like – while I consider myself to be one of the most empathetic people I know, it is impossible to fully understand anyone’s experience without being in their skin.
I have lost my voice on one other occasion – remarkably, I was 16 spending a month in France, with very little French under my belt. I guess life likes to test my ability to communicate (which – as is clear – is NOT always done with speech.)
In any case, it’s as the saying goes – you don’t always realize what you have until you lose it. I’d never anticipate not having the ability to speak was an easy road…but it is a welcome experience. (Now I’m not exactly encouraging anyone to go out to a concert and scream at the top of his or her lungs to deliberately subdue the vocal chords…I’m just saying, there is good to everything. Yes, including getting sick and losing a primary means of communication.)
Now my husband has a little bit of a challenge playing the guessing game as far as “what is my wife trying to say now?” He’s doing a remarkable job of deciphering, decoding, and understanding what I am trying to say, and that’s not easy to do! So I’m very fortunate to have the support and patience.
Going to the store is also an enlightening experience – I can’t say “thank you,” or “excuse me” as I normally would, nor can I respond vocally to others. That leaves me feeling a little bit awkward as reciprocal speech is one of the key forms of communication many of us learned from infancy. When I indicate with gesture and my lips that I have lost my voice, people either immediately begin to whisper or act altogether more gently – it’s incredibly interesting! (I actually can’t even whisper, as that puts more stress on the vocal chords than speaking does!)
The other side of it is that I’m derailed from my activities – in part I simply don’t feel up to them physically. The pain and discomfort though. . .I think about all the children with autism suffering from sensory sensitivities without the ability to say “those lights are hurting my eyes,” “this fabric makes my skin burn,” “my chest hurts….” What is life like for them? Many “behavioral issues” are a result of such a scenario – they don’t have a means to say what they are feeling.
For the children who are deaf or hard of hearing, thankfully they do have words at their disposal (albeit non-speech, hand / facial /body gestures.) I learned “sick,” “feel,” “bathroom,” and “okay?” as quickly as I could. Fortunately I’m learning many other words too…but knowing that it will take time, it’s important I know some basics.
Even if I was feeling better, my usual day-to-day would still be a substantial challenge – I can’t make a singe phone call, for one. I can’t ask for help locating a medicine at the store. If I were in an office, I’d have to type everything out (doable, but less efficient.) I certainly can’t breakdown a Ninjutsu technique the way I could by asking questions in class, and I definitely can’t teach or volunteer. I have to rely on gestures to talk to others I might run into in my own apartment building because I am utterly devoid of my usual method of communication…
So it’s been a remarkable few days…
While I’m sure it’s not fun to be around me while I’m loudly coughing, slower-moving, and unable to answer even the easiest question, I feel truly thankful for the experience. In fact, I’m taking the opportunity to review videos from the ASL course modules that I’ve already completed – I will hopefully be seeing the Special Olympics kids on Wednesday to skate and I know a few happy ones who use ASL exclusively. 🙂
I’ve been taking a graduate course in autism spectrum disorder (ASD) over the last few months and I’ve loved it so much more than I can say. Having been out of the school circuit for 17 years, it’s definitely been eye-opening across the board! But nothing beats the feeling of learning more about ASD and other pervasive developmental diseases – I’ve truly found my passion, and am ever eager to apply what I learn to my volunteer work with children, teens, and adults of varying disabilities.
In a recent discussion we talked about idioms – a type of “language” that we all use without really thinking about it. Neither, therefore, do many of us consider the implications on individuals with autism or other developmental disabilities and delays. As I prepared for the discussion, I realized that I couldn’t think of any I had used “off the top!” Sure enough, as I snooped about online, I discovered I use quite a few. For example:
All ears It takes two to tango
Blessing in disguise Method to the madness
Chomp at the bit Not playing with a full deck
Cry over spilt milk Off his rocker
Curiosity killed the cat Once in a blue moon
Devil’s advocate Over the moon
Silver lining Piece of cake
Hit the hay Speak of the devil
Hit the nail on the head Take it with a grain of salt
My classmates also came up with a hefty array of phrases, many of which I hear or say myself (“I lost my marbles!” comes to mind. 🙂 ) In combination with meticulous observation of my own idiom usage (for the purposes of this assignment) I found that I say them with relative frequency in every day speech. . .as does just about everyone around me. The funny thing is that I actually had to look up examples – using idioms is so much a part of our language that I wasn’t even aware. This sentiment was, as it turns out, shared by my classmates…
Having learned throughout my course that individuals with ASD often take language literally – truly at its face value – I am now far more attentive to my verbal language when communicating with them. Paired with deficits in social skillsets (such as joint attention, inability to read body language, verbal tone, cues and so forth), the literal translation of idioms could pose a substantial challenge during interaction. Our course has touched on the multitude of challenges that children with ASD face in the realm of communication (which includes a lot more than just “verbal language.”) The point has also been made that it isn’t always obvious to an outsider that someone with ASD won’t understand conversation, as some have a large (and impressive!) vocabularies.
I recall once saying (prior to my class, in a volunteer capacity) “you could be a pro!” to a child with ASD kicking a soccer ball. He asked what I meant and I realized that I didn’t say “professional soccer player,” which is what I needed to express in order for him to understand my meaning. While not an idiom per se, the language was not complete – an abbreviation I took for granted was not clear to him. This experience was eye-opening and I realized I needed to up my awareness when conversing with an individual with ASD. It is not at all a matter of intelligence – I find many to be incredibly bright…and they are! – more that I need to recognize the common trait of taking words exactly as spoken. I myself have a tendency to read into what I hear, sometimes taking comments as literal and serious.
Despite that English is my only fluent language, I always loved learning foreign languages in school. I remember purchasing books that offered slang and street French / Italian (even Latin!) so that I could perhaps utilize the language in the way native speakers do…or at least follow their conversation. Slang and idioms are a HUGE part of a culture’s social structure – they are thrown around with such frequency that not understanding them can pose a substantial language barrier as well as, at worst, flat-out social isolation. Think about learning a new language in school, then being immersed in that culture. The stream of communication of someone native to the language will be riddled with idioms – we all do it! We might then find ourselves saying, “what do you mean?” just like the child with ASD asked me.
This is a massive task for teachers because there are infinite ways in which idioms may present, and there are in the order of twenty-five thousand in English alone. (Wikipedia, as retrieved from: https://en.wikipedia.org/wiki/Idiom ) We read an article written by Temple Grandin earlier in the course and she mentioned how she has to mentally retrieve visuals and concrete memories based on previous experiences to know how to respond appropriately in social situations – what a daunting task! When we study a specific technique in Ninjutsu (a current Martial Art of mine) we sometimes discuss that the founders of the Art did not always teach a follow-up submission or takedown with it – the reasoning was that there are so many permutations, the task would not only be overwhelming, but students would be trying to remember far too many combinations (diverting attention from the more important fundamentals.) Way to go, Temple, for mastering that ability!
In the case of language, however, not learning idiomatic expressions will absolutely leave a child at a disadvantage – out of the realm in which peers and others knowledgeable about their disabilities (and therefore able to accommodate), an individual with ASD may be left bewildered by the normal conversational style of society. Again, as above, potentially leading to isolation and less opportunity for interactions (which also means less practice!)
Teaching generalization is vital for the individuals, and I do think key idioms must be addressed. That all said, I think that a learning program must – as all instruction – be highly specific, and tailored to the individual with ASD. If he or she is at a level at which more can be mentally digested, perhaps more idioms can be taught – but I sincerely believe that core fundamentals of are crucial, and must – as an order of operations – be learned before attempting to master more descriptive, idiomatic expressions. (I did see, per the below, a plethora of visual representations of idioms, which would be a perfect way to introduce them to children with ASD!)
People are complicated – even when you make every effort to empathize, to walk in another person’s shoes, putting aside the urge to respond negatively, some people are painfully impossible to deal with.
When we understand the notion that another person’s response and (re)actions are effectively a result of their place in their own evolution (which cannot rightly be compared to ours or anyone else’s) it is far easier to deal with them.
While I *want* to take the path of gentle kindness, absence of judgment, 100% positivity…I don’t always. I’m human! But imagine, then, how easily I set up the disappointments in expecting others to meet me on that plane – if I really want to be those things with every fiber of my being and I still fall short too, it seems I’m expecting a bit (a lot!) too much of everyone else.
That doesn’t mean to say behaviors are excused, that I don’t have a right to expect a certain level of decency, for example, or for someone to live up to basic standards. What I mean is that if I understand others aren’t on my wavelength, it makes letting things go, and moving on, a whole lot easier. It helps me to recognize that I operate at a different vibration, in other words, which gives a lot less power to other people…and puts more (potentially all of it, wouldn’t that be nice!) in my hands.
No one else has a right to ruin my mood – I let it happen sometimes, and that’s on me. When I change my view, and recognize that, while a lot of people have done some hard-work-soul-searching…probably more people haven’t.
To face oneself is one of the bravest things anyone can do, but it doesn’t occur to people naturally all the time… We live amidst an increasingly mindful existence in some ways, and a horribly (and rapidly-occurring) detached one in others. If people haven’t “met themselves” on a deeper level, they simply aren’t capable of meeting you at your vibrationally higher altitude.
It may be a challenge to disassociate and detach from others when their behaviors fall short in our eyes…but when we learn to do it, we can live a much more peaceful existence. I’ve worked on this one for a long time, and I’ve got many moons and miles yet to go – but progress is progress and knowing is absolutely half (or more) or the battle.
This week a lot of friends have seemed to have had their share of communication breakdowns – on their side, or on the part of another person….parents, children, instructors, training partners. . .and it prompted me to think about it. You’d think Mercury was in retrograde! (Don’t worry, it isn’t for some weeks 😉 )
It never ceases to amaze me, though, how similar situations can be, even when involving vastly different topics, completely different areas of Life, and totally different players. Communication, however, is the underlying thread weaving it all together. . .
Communication isn’t relegated to one type of relationship, nor to specific people – it isn’t just about friendship, or marriage, or work, or family. . . Communication is what sets us apart – it’s what binds our species, allows us to function at high levels, to accomplish collective goals, to learn, to love, and to live. Communication isn’t in and of itself horribly complicated, but humans ARE. . .and that’s where it gets tricky. (Modern life does bring a few challenges as well…)
Emotions, preconceived notions, previous experiences and conditioning. . .it all plays a part in how we respond to stimulus. While humans are capable of incredible strength, that doesn’t mean we aren’t also highly sensitive (I know I am!) – the way in which we communicate is therefore as important as the words we are using. Words, keep in mind are defined differently, even among those were are most similar to – in this case, the nonverbal, the tone, and the delivery makes a difference.
A HUGE one.
Everyone has had their fair share of “stuff” – we’ve all been marred by life’s rough edges, nature’s unpredictability, and lessons we needed to struggle through in order to fully learn (I’m still learning quite a few, including the topic at hand.) As a result, most of us walk around with what I call “walls-at-the-ready” – we are kind of like collapsible fortresses just waiting for the moment to erect our barricades, and employ our moats.
So communication then can become a very delicate – and powerful – affair.
There is a true art to navigating what could easily become choppy seas (at our own hands – or our chosen communication.) There are tons of articles, books, seminars out there (such as this one) but no matter which relationships they are intended to better, they speak to the same key principles. So it doesn’t matter if it’s your child, a new co-worker, a parent, a friend, a spouse, a sibling – the keys to communicating well focus on the same fundamental ideas, and can apply across the board.
Listening matters – listening with the intent to reply is not the same thing. We need to listen to hear and understand from the other person’s perspective. Whether or not we agree, feelings are just that – as such, they are valid even if we don’t “get it.”
Everyone wants empathy and to be understood – no matter how much you may disagree, recognizing that the person speaking has a valid and true reality – for them – helps to bring them down a notch. Or several.
MAINTAIN CALM CONVERSATION
People are open and responsive to calm conversation – the second the heat of anger is turned up, or promise of threat implied . . .POOF! . . .Barricades!
AVOID ATTACKING, BLAMING, SHAMING
People are (at least generally) open and responsive to discussion provided they aren’t in a corner – the slightest attack, criticism, blame, there go those walls again. What you want to convey will be shut out like an enemy coming in full force. No bueno, as they say…
Keeping the focus on the issue at hand makes for a cleaner conversation – muddling the mix with outlying topics that really have no part to play make a mess, quickly. Not to mention a full suit of armor on the other side!
Usually communication is only difficult when it’s controversial – when it may cause discomfort (like embarrassment, anxiety, self doubt etc), when it’s about a touchy subject, (embarrassment, shame, etc), or it provokes a fear-based response (as in “fright or flight” – resulting from directed anger, frustration, for example.) At those times, that’s when we LEAST want to be gentle and “follow guidelines of effective communication”!!
But, as they say, a moment of patience can make a lifetime’s worth of difference.
Listen to the other person and, whether you agree or not, make the effort to recognize their view. Keep yourself calm, avoid blame and attacking, and stick to discussion mode – people will be far more able (and willing!) to receive, and are less likely to block you out. If you feel like you can’t contain the disappointment, anger, frustration etc, do something else until you can be calm.
People are complicated, and so is Life. Even your best friends and closest family members meet discord from time to time (if they didn’t they wouldn’t be breathing!) that’s okay – it happens! We aren’t always going to see eye to eye, we aren’t always going to define terms the same way, and people aren’t always going to behave exactly the way we want all the time.
One of my favorite expressions is “how important is it?” It’s one I heard growing up, and it’s one I hear frequently today. As spoken at a dear friend’s wedding recently – in fact, by a very wise and learned woman – you can be right, or you can be happy. Again, this applies to all areas of life, and to all kinds of relationships…
For example, I’ve seen a marked change in my own relationships with family members over the years, and every so often I catch myself really thinking about how our interactions have (or haven’t!) evolved since childhood – sometimes it’s difficult, sometimes it feels down-right painful. . .but Life doesn’t stop because I don’t agree with something, or I feel hurt.
The more I can communicate effectively and in a kind way, the healthier all my interactions will be, and the better I – and others – will feel. That means learning to do things that maybe I’m not so great at, or challenging my mood at that moment, or, even tougher, changing things I’ve done my whole life – sometimes what used to work for us doesn’t anymore! I know I’m a work in progress…but I am working at it, because there are areas in which I know I can do better.
I loved this excerpt, read by a friend recently, as it captures the essence of the idea perfectly:
” Today being aware of the words I use, I am learning to communicate more responsibly. I not only share in a more straightforward manner, but I also argue in a healthier way. There are better was to express myself than to say ‘you did such and such to me.’ I can talk about myself and my feelings. I can explain the way I experienced something rather than telling the person how he or she made me feel…
“…We learn in time that it is not the subjects which are controversial, but the manner in which we communicate about them and the elements of personal blame we add to them in anger.”
CTC by AFG p 176.
Effective, healthy, and happy communication can be accomplished, but it does take a little work. We are thrown to the wolves in many ways, and learn to swim in the deep end by trial and error – there aren’t structured courses in school about interpersonal relationships, and workplaces don’t exactly help you along either! Unless we seek out our own kind of learning, it feels a lot like a shot in the dark, especially when we meet new people, are navigating a new job etc… Even when it comes to parents and children who’ve been together for a lifetime – life changes! I recently was reflecting on how I could do a better job of understanding, as well as responding to a parent differently.
If things aren’t being communicated as smoothly as you’d like, or you feel it’s complicated and overwhelming, know it is NOT a lost cause. The phrase “DO UNTO OTHERS AS YOU WOULD HAVE DONE TO YOU” works really nicely – that’s basically the gist of it. So if all else fails, just think about how you’d want to hear criticism, or how you would want someone to convey some tough news. When we are in that kind of a mindset, we usually are off to a great start.
Here’s to the journey of Life! ❤